Our team, the Johns Hopkins NFPTR, has stepped up to Wage Hope at Purple Stride, the walk to end pancreatic cancer.Will you help us rewrite the future of this disease by making a donation today? Every dollar that you donate ensures that the Pancreatic Cancer Action Network can continue working to create better outcomes for pancreatic cancer patients and their families. By donating to our team, you are supporting vital efforts to double pancreatic cancer survival by 2020.
A bit more about us: National Familial Pancreatic Tumor Registry (NFPTR)was established in 1994 to find the genetic and non-genetic causes of pancreatic cancer. We are particularly interested in finding the genes that cause pancreatic cancer to cluster in some families. We cannot yet explain the clustering of pancreatic cancer in most families; however, we continue to identify new familial pancreatic cancer genes that explain this clustering. For example, in 2009 and 2012 we discovered that mutations PALB2 and ATM genes jointly account for up to 5% of the clustering of pancreatic cancer families. For more information on the risk of pancreatic cancer in families and genes associated with pancreatic cancer, please see the frequently asked questions section of our website: www.nfptr.org/faq.php
Participation in the registry only requires the completion of a family history questionnaire from the perspective of a family member with pancreas cancer. If you are interested in participating, check out our website for our Questionnaire Request form (http://pathology.jhu.edu/pancreas/nfptr/how.php), give us a call (410-955-3512), or send us an email at firstname.lastname@example.org.
It's our hope that by working together with families affected by this disease, we can come to a better understanding of it and make impactful strides against it.