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News and updates for the WPCC community. View in browser.
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September 2017 |
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Michaela Hartenstein founded Austrian patient advocacy group
Selbsthilfegruppe Pankreaskarzinom (Support Group Pancreatic Cancer).
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Member Profile:
Selbsthilfegruppe Pankreaskarzinom
In 2016, two years after the death of her mother to pancreatic cancer, Michaela Hartenstein quit her job in the pharmaceutical industry and set up a patient advocacy group in Austria to fully support patients and families fighting the disease. The organization, Selbsthilfegruppe Pankreaskarzinom (Support Group Pancreatic Cancer), was the first in the country dedicated solely to pancreatic cancer.
READ MORE
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September 7 Webinar Follow-Up –
Get the Recording, Materials!
Thank you for participating in the Sept. 7 "WPCD Public Relations Training" webinar. If you missed it, here is the recording. We discussed new materials you can download and use to promote WPCD 2017, including additions to the Demand Better Toolkit, as well as new Media Materials:
- User-generated content (UGC) instructions
- Proclamation instructions and templates
- Risks and symptoms infographic
- Press releases, advisory, pitch letter and op-ed
A key takeaway from the webinar: We need short videos from survivors, caregivers, researchers and others with an interest in pancreatic cancer so we can generate more awareness of WPCD. You will see simple instructions for capturing user-generated content in the Demand Better Toolkit, along with how and where to send the videos. Please send your videos THIS MONTH – we need global representation!
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WPCC Member Survey 2017:
We Need your Input!
We need your input on two very important topics – the program for our 2018 WPCC Annual Meeting in Coral Gables, Fla., and how the WPCC can support sharing of best practices between members. Please complete the survey by Sept. 21. It will take less than five minutes and will help us with our planning!
TAKE THE SURVEY
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#PancChat Twitter Gathering
#PancChat is a monthly Twitter gathering of the pancreatic cancer community, designed to increase engagement on a variety of important topics for patients, caregivers, researchers and healthcare providers. WPCC members, including Let's Win, Lustgarten Foundation and the Pancreatic Cancer Action Network, will participate in the #PancChat on Nov. 14. It is open to all WPCC members with a focus on risks and symptoms. Join by going to www.twitter.com and searching for #PancChat.
#PancChat
Tuesday, Nov. 14 at Noon Pacific (U.S.) Time
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World Pancreatic Cancer Coalition Steering Committee Members
Julie Fleshman, Chair
Pancreatic Cancer Action Network (USA)
Barbara Kenner
Kenner Family Research Fund (USA)
Cindy Gavin
Let's Win/Lustgarten (USA)
Ali Stunt
Pancreatic Cancer Action (UK)
Alex Ford
Pancreatic Cancer UK (UK)
Stefanie Condon-Oldreive
Craig's Cause Pancreatic Cancer Society (Canada)
Michelle Capobianco
Pancreatic Cancer Canada (Canada)
Carl Hamilton
PALEMA (Sweden)
Catherine Holliday
Centre for Community-Driven Research (Australia)
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World Pancreatic Cancer Day Committee Members
Ali Stunt, Chair
Pancreatic Cancer Action (UK)
Kate Elliott
Craig's Cause Pancreatic Cancer Society (Canada)
Charlotte Zamboni
Pancreatic Cancer UK (UK)
Jessica Abelsohn
#Purpleourworld (Australia)
Scott Saunders
The JCM Foundation (USA)
Dora Constantinides
PASYKAF (Cyprus)
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Have questions for the WPCC?
Email Project Lead Clara MacKay at clara@worldpancreaticcancercoalition.com. |
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